Epidermolysis Bullosa (EB) is a rare skin condition affecting around 5,000 people in the UK. People with EB have extremely fragile skin which can tear and blister at the slightest touch. There are many variants, and one-year-old James has the most severe form of the condition.
Following a devastating diagnosis during pregnancy, parents Helen and Ben didn’t think they’d get more than a few hours with their baby. But Orla came out fighting and the family spent three days together, making precious memories they’ll never forget.
Stephanie Nimmo is releasing her first book, Was This In The Plan?, about her family's rollercoaster journey through life-limiting illness, terminal cancer and autism - and is donating 5% of the RRP of book pre-orders to Shooting Star Chase.