April 13, 2017 12:20 pmPublished by Hayley EppsLeave your thoughtsEpidermolysis Bullosa (EB) is a rare skin condition affecting around 5,000 people in the UK. People with EB have extremely fragile skin which can tear and blister at the slightest touch. There are many variants, and one-year-old James has the most severe form of the condition.
April 13, 2017 11:59 amPublished by Hayley EppsLeave your thoughtsFollowing a devastating diagnosis during pregnancy, parents Helen and Ben didn’t think they’d get more than a few hours with their baby. But Orla came out fighting and the family spent three days together, making precious memories they’ll never forget.
April 7, 2017 11:23 amPublished by Hayley EppsLeave your thoughtsUp until the age of seven, George was living a life like any other healthy child. But one day everything changed for him and his family.
March 22, 2017 10:49 amPublished by Hayley EppsLeave your thoughtsWe’re currently planning a brand new challenge event for September 2018 and are calling on supporters to register their interest...
March 9, 2017 4:49 pmPublished by Hayley EppsLeave your thoughtsMichele's three-year-old son, Marcus, has had respiratory problems since birth and a tracheostomy helps him to breath. But when it came to using a hospice for support, Michele was reluctant - until she realised how invaluable Hospice at Home care would become for her family.
