Author Archives for Hayley Epps

James’ story

April 13, 2017 12:20 pm Published by Leave your thoughtsEpidermolysis Bullosa (EB) is a rare skin condition affecting around 5,000 people in the UK. People with EB have extremely fragile skin which can tear and blister at the slightest touch. There are many variants, and one-year-old James has the most severe form of the condition.

Orla’s story

April 13, 2017 11:59 am Published by Leave your thoughtsFollowing a devastating diagnosis during pregnancy, parents Helen and Ben didn’t think they’d get more than a few hours with their baby. But Orla came out fighting and the family spent three days together, making precious memories they’ll never forget.

Marcus’ story

March 9, 2017 4:49 pm Published by Leave your thoughtsMichele's three-year-old son, Marcus, has had respiratory problems since birth and a tracheostomy helps him to breath. But when it came to using a hospice for support, Michele was reluctant - until she realised how invaluable Hospice at Home care would become for her family.