Nine-year-old Lilah has been recognised by Disney for her kind support to Shooting Star Children’s Hospices, as part of their new Ultimate Princess Celebration campaign, championing the qualities of courage and kindness.

She is honoured in a new Disney Princess digital storybook, Tales of Courage and Kindness, for her own extraordinary act of kindness – asking for donations instead of birthday gifts, so children and their families could enjoy a beach sensory day at our hospice.

The digital book, with 14 original Disney Princess stories, aims to inspire children through the adventures and values of these beloved characters, who each demonstrate the importance of courage and kindness, in the face of adversity.

Disney worked with charity partners, including children’s hospice umbrella organisation, Together for Short Lives, to work with hospices to identify real-life young people who have displayed extraordinary courage or kindness, to be honoured within the story book. We nominated Lilah as an inspirational young supporter and she was chosen to be honoured for her wonderful act of kindness.

In 2019, Lilah decided that she wanted to make children happy on her 7th birthday, so she set up a birthday fundraiser and asked people to donate to Shooting Star Children’s Hospices in lieu of birthday gifts.

Lilah knew she wanted to do something for others and her mum Lisa learned about the work of Shooting Star Children’s Hospices on Facebook. After a discussion with Lilah to explain what children’s hospices do, and who they care for – Lilah decided to use her birthday to kick-start the fundraising to cover the costs of a party entertainer for one of our activity days.

Lilah’s fundraiser was so successful, our care team were able to make even more special memories for the children and families we support – by creating a super sensory beach-themed activity day.

In addition to fundraising, Lilah also helped organise and set up the fin-tastic day, which was complete with a sensory sea area, seaside-inspired arts and crafts, including sand dough handprints, and a bubble entertainer who created bubbles big enough for a child to fit inside!

Lilah, is just one of 14 children across the world that has been chosen to have one of these special storybooks dedicated to her, with Lilah’s story featured in the story of Princess Ariel from The Little Mermaid – her favourite Disney Princess.

Lilah says, “Ariel is my favourite Princess because she has long hair like me, and I love the ocean. I was really excited and happy to get a special gift from Disney too! I wanted to fundraise for Shooting Star Children’s Hospices because I know I am blessed and wanted to help other children. The hospice made me feel like a princess when I went in to help set up the beach day party.”

Speaking at the time of the beach sensory day in 2019, Lilah’s mum Lisa said, “When Lilah came home she was beaming with pride and feeling like a celebrity and was overwhelmed, in a lovely way, with the reception she had from the hospice team that day. The kind birthday card and plaque received from the hospice team, remains a lovely memory of Lilah’s 7th birthday and the difference she felt she made.”

We are thrilled that Lilah’s kindness has been recognised and think she’s a real inspiration! A huge thank you and congratulations to her from everyone at Shooting Star Children’s Hospices.

You can find out more about Disney’s Tales of Courage and Kindness, read the stories and see the dedication to Lilah in Ariel’s story at

If you’ve been inspired by Princess Lilah and have a celebration coming up – why not set up a donation page online to share with friends and family and ask for donations to Shooting Star Children’s Hospices in lieu of gifts. If you use Facebook you can easily set up a Facebook fundraiser to support us – all donations made through Facebook go straight to us, with no commission.