Blogger and bereaved mum, Stephanie Nimmo, is releasing her first book, Was This In The Plan?, in September about her family’s rollercoaster journey through life-limiting illness, terminal cancer and autism – and is donating 5% of the RRP of book pre-orders to Shooting Star Chase in memory of her daughter, Daisy.
Using the same title as Stephanie’s blog, Was This In The Plan? provides an honest account of being a full-time carer for her youngest daughter, Daisy, after she was diagnosed with rare genetic disorder, Costello syndrome; coping with the challenges of both her sons’ autism; and losing her husband to terminal cancer in 2015. The book also highlights how charities like Shooting Star Chase provide a lifeline for children with life-limiting conditions and their families.
Stephanie is donating a percentage of her book’s pre-orders before its release on 12 September 2017 to honour the memory of Daisy, who sadly died in January 2017 after bravely battling her condition for 12 years. Shooting Star Chase has cared for Stephanie’s family since 2005 with short breaks, emergency stays, Hospice at Home, and therapies – and they continue to receive support for bereavement at our Hampton-based hospice, Shooting Star House.
Stephanie, who lives in Wimbledon with her three children – Theo, Xanthe and Jules – says about her book: “I decided to write Was This In The Plan? to help educate a wider audience on the issues we’ve faced as a family and to inspire readers to see that the unexpected will always happen, but it’s how we respond that makes the difference. Shooting Star Chase have been, and continue to be, an incredible support throughout our journey – which is why I talk about their vital service in my book, and why I decided to donate 5% of pre-orders to the charity.
“Shooting Star Chase cared for Daisy for all of her life, and the hospices are where Daisy went for sleepovers, where she loved to play and have fun, and where she could just be a little girl, and in the early days where we enjoyed weekends as a family. But they didn’t just care for Daisy – they gave her siblings, and me and my husband, practical and emotional support too, and lots of very happy memories.
“When Daisy passed away earlier this year, Shooting Star Chase cared for us as they always promised – Daisy laid in rest at Shooting Star House and we stayed in the family flats so they could support us through our grief and the practicalities of arranging Daisy’s funeral. We will always be grateful for everything Shooting Star Chase do for us and they will always be part of our story when we remember Daisy.”
Director of Care at Shooting Star Chase, Helen Sibley, said: “Stephanie and her family have been through some truly unimaginable circumstances, particularly in recent months after the very sad death of Daisy, and Stephanie’s honest and brave account of her family’s life in Was This In The Plan? is overwhelmingly powerful. Her new book will help many more people understand disabilities, children’s hospice support and what it’s like to be a carer – and empower others in similar situations to tackle the unknown with strength and positivity.
“We’re extremely grateful to Stephanie for her very kind pledge to donate 5% of Was This In The Plan? pre-orders to Shooting Star Chase, and it’s testament to her selflessness and dedication that in the midst of bereavement she continues to raise money for the charity and help other children with life-limiting conditions, and their families, who are desperate for support.”
Was This In The Plan? will be published by Hashtag Press Ltd on 12 September 2017 (RRP £12.99) and will be available in eBook and paperback formats internationally, online and in all good bookshops. The book can be pre-ordered now via stephnimmo.com and 5% of the RRP will be donated to Shooting Star Chase.