End-of-life care

Our core mission is to provide expert nursing and medical care, including the management of difficult symptoms, for children at end of life. Our symptom and community nurses work to ensure families receive support in their preferred place of care – whether that’s at home, at our hospice or in hospital.

Symptom management

Many of the children we support have very complex symptoms which may change over time, particularly towards the end of life.

Our symptom management and palliative care enables very sick children to be supported and cared for both at home and at our hospices. Our symptom care is led by Dr AK Anderson, a consultant in Paediatric Palliative Medicine – of which there are only seven in the country – and a team of Clinical Nurse Specialists who are trained in symptom management.

Their role is to support the child’s own GP, their medical team and Children’s Community Nursing Team through assessment and advice on managing various symptoms including pain.

Palliative care

At end of life, our dedicated Symptom and Community Nursing Team work in collaboration with specialist teams at the Royal Marsden Hospital, Evelina London Children’s Hospital and Great Ormond Street Hospital to provide expert medical and nursing care, either at one of our hospices or in the child’s own home, 24-hours a day.

Our team work alongside the child and family and help co-ordinate the wide range of professionals who are involved in the child’s care, to ensure that the families wishes are at the centre of care provision and decision making.