Below are a few websites which provide useful information to families, like yours, who have a child with a life-limiting condition.
Together for Short Lives
Together for Short Lives is the national charity for children with life-limiting conditions. They support families, professionals and services, including children’s hospices.
Hospice UK is the national charity offering services to support hospice and palliative care professionals across the UK.
Child Bereavement provide support to families to help them to rebuild their lives, when a child grieves or when a child dies.
Contact a Family
Contact a Family is committed to ending the poverty, difficulty and isolation experienced by families with disabled children across the UK.
Winston’s Wish offer practical support and guidance to bereaved children, their families and professionals.
Sullivan’s Heroes is a charity offering fundraising support and financial assistance for families raising essential funds towards vital home adaptations for a disabled child.
Cruse Bereavement Care
Cruse Bereavement Care offer support, advice and information to children, young people and adults when someone dies, and to enhance society’s care of bereaved people.
Disability Benefits Helpline
Government website for advice on Disability Living Allowance, Attendance Allowance or Personal Independence Payment.
Citizens Advice – benefits
Information on benefits and tax credits if you are working or unemployed, sick or disabled, a parent, a young person, an older person or a veteran.