A brave trio have baldy gone to hair-raising levels in aid of Shooting Star Chase. Sarah Knowles from Crawley, thought of the daring idea of shaving her head to raise some money and awareness for the charity and even roped in some friends, Shain and Shaun to join her.Sarah’s son Jack has been supported by the charity for 8 years. Jack has a rare genetic neurodevelopmental condition called MECP2 duplication syndrome and severe epilepsy, which leaves him wheelchair-bound, unable to talk or feed himself. He also has a number of seizures every night. Jack wasn’t diagnosed until he was 9-years-old because not a lot is known about his condition – which has only been identified in around 120 people worldwide. At 19-years-old, Jack has lived longer than doctors predicted he would, which Sarah, attributes to his fighting spirit.“Shooting Star Chase is a charity close to my heart and I wanted to try and raise as much as possible to help them to keep doing the good work they do. I always fancied doing something different and thought a charity head shave would be a perfect way to raise some money!” explains Sarah.Sarah, Shain and Shaun fulfilled their promise at the weekend (10th March) in front of an audience of over 1000 people, braving the clippers on the main stage at a special opening season event at Coome Haven Holiday Park in Sussex. “We thought it would be a great place to do it and also encourage people to sign up and donate for Shooting Star Chase,” says Sarah.
Still counting and collecting donations, the three friends hope to have raised £2000 to go toward providing vital care for babies, children and young people with life-limiting conditions.
Ellie Bennett, Community Fundraiser at Shooting Star Chase, says: “We are so amazed by Sarah and her friend’s dedication to fundraising for Shooting Star Chase and completing this very brave challenge! We’re really grateful for Sarah’s support and raising as much money as possible for Shooting Star Chase. Her courage will help so many families like hers who are struggling with a diagnosis of a life-limiting condition and need our support.”
To donate to Sarah’s JustGiving page, please visit: www.justgiving.com/fundraising/sarah-knowles11
For more information about challenges you could take part in visit www.shootingstarchase.org.uk/support-us/events/