A supported teenager who struggles to speak has made the ultimate romantic gesture this Valentine’s Day by defying his condition to write and perform a song for the object of his affections.
The lyrics to the song, entitled Love, were penned by 16-year-old Amyas over a number of music therapy sessions at our Hampton-based hospice, Shooting Star House, and were written about his crush, Jordan, a 16-year-old girl who is also supported by Shooting Star Chase.
Love is one of nine songs written and recorded by Amyas during music therapy sessions, all of which are being made into an album for his family and friends. Amyas’ songs are performed with musical accompaniment from Lead Therapist at Shooting Star Chase, Sarah Hodkinson, who said:
“Music is an invaluable form of therapy for the children and teenagers we support at Shooting Star Chase. The sessions give them an opportunity to communicate in new and profound ways, particularly as many of those we care for are unable to speak and struggle to express themselves.
“Amyas loves making music and putting his thoughts and feelings into lyrics, and it’s amazing to see him perform such a beautiful song. He was chuffed to watch his video back and is excited to share his love for Jordan with the world – he has even done a photo shoot for his album cover. I think we have a superstar in the making!”
On Valentine’s Day, Amyas played Jordan her song and even gave her a Valentine’s card. Watch Jordan’s reaction:
Amyas has a genetic condition called Lesch-Nyhan syndrome which means he uses a wheelchair, has involuntarily muscle movements and has difficulty speaking clearly. He’s been supported by Shooting Star Chase for 8 years and benefits from services such as short breaks at Shooting Star House; music therapy; and youth groups.
Music therapy is just one of the services offered to children with life-limiting conditions, and their families, at Shooting Star Chase – and the sessions provide a safe, secure space where supported children are not under instruction, and are free to express themselves through sounds, gestures and words.