Observational study of child & parent sleep.
Current Research Projects
We are committed to advancing evidence-based practices to deliver exceptional care for children with life-limiting conditions and their families. Recognising that paediatric palliative care is under-researched compared to adult care, we lead on studies that address this gap.
Our work includes in-house projects, collaborations with healthcare providers and universities, and support for external researchers. We use ethical, child-centred methodologies, ensuring the voices of children, young people, their families and those bereaved through the death of babies and children, are integral to every stage of research.
Sleep Quality
Therapy Support
Evaluation of group EMDR therapy.
Mental Capacity Assessment
Use of MCA in young people with life-limiting conditions.
Simulation Education
Evaluation of training for healthcare professionals in paediatric palliative care.
We Participate in National Research Projects:
Support for families of children who died suddenly or unexpectedly.
(University of Southampton)
Complexities in health, education and social support for children and young people.
(King’s College London)
Development and validation of a breakthrough pain questionnaire.
(University of Southampton)
(University of Leeds, King’s College London)
Improving assessment and outcomes of dystonia in children with life-limiting conditions.
(Queen Mary University of London)
Improving integration of children’s hospices with other health and care services.
(King’s College London)
Completed Collaborations
Improving access to palliative care for people from minoritised ethnic groups.
(University of Lancaster)
Cultural Competence training for professionals working in children’s palliative care.
(Swansea University)
Healthcare professional’s experiences of psychological debriefing following the death of a child.
(University of Southampton)
Development of the Children’s Palliative Care Outcome Scale
(King’s College London)
Our Research Collaborators
