Dr Hannah Linford (pictured left) is Consultant in Paediatric Palliative Care and Sinead Summers (pictured right) is Perinatal Clinical Nurse at Shooting Star. They work together in our Specialist Paediatric Palliative Care team (SPACE), supporting babies with life-limiting conditions, and their families.
“A key part of our work is building relationships with perinatal and neonatal teams across the region. Through attending fetal medicine meetings and neonatal ward rounds, we are often able to meet families from the point of diagnosis. This gives us the opportunity to offer support early, helping families navigate what can be an incredibly challenging and uncertain time.
“Every family’s journey is unique, but our aim is always the same: to ensure they feel supported, informed and empowered to make the choices that are right for them. Whether that involves symptom management, advance care planning, end-of-life care, or simply being there to listen, we work alongside families and the professionals caring for them to provide compassionate, personalised support.
“While much of our work takes place in hospitals, we are passionate about helping families access the full range of support available through the hospice, including care at home or in the hospice itself when possible. At a time when so much can feel out of their control, we strive to give families choice, comfort and the reassurance that they are not facing their journey alone.”
