“I am a Shooting Star Children’s Hospices mum. A few years ago, that would have meant very little to me. Today, it means I belong to a group of parents with a life-limiting condition and we will probably have to say goodbye to our children way too early.”
16-year-old Josh was fit, sporty and unassuming. He’d had no significant health concerns, until one day the family’s world came crashing down. Mum Caroline shares their story.
The Nimmo family have benefited from our care service since 2005, but following two tragedies in the space of three years, Shooting Star Children’s Hospices has been there for them more than ever before.
Watch the powerful and touching alternative Christmas advert produced by Shape History in aid of Shooting Star Chase, highlighting the importance of awareness and support at this time of year.
Epidermolysis Bullosa (EB) is a rare skin condition affecting around 5,000 people in the UK. People with EB have extremely fragile skin which can tear and blister at the slightest touch. There are many variants, and one-year-old James has the most severe form of the condition.
Following a devastating diagnosis during pregnancy, parents Helen and Ben didn’t think they’d get more than a few hours with their baby. But Orla came out fighting and the family spent three days together, making precious memories they’ll never forget.
Up until the age of seven, George was living a life like any other healthy child. But one day everything changed for him and his family.
Michele’s three-year-old son, Marcus, has had respiratory problems since birth and a tracheostomy helps him to breath. But when it came to using a hospice for support, Michele was reluctant – until she realised how invaluable Hospice at Home care would become for her family.
12-year-old Ruby has got various symptoms which have developed over many years. She has lots of diagnoses, but no defined condition, which means her symptoms are difficult to manage.