Lilly-Anne’s story

Lilly-Anne was born five weeks early in June 2013 and from the very start mum Katie picked up on signs that things might not be right with her newborn.

Josh’s story

16-year-old Josh was fit, sporty and unassuming. He’d had no significant health concerns, until one day the family’s world came crashing down. Mum Caroline shares their story.

Daisy’s story

The Nimmo family have benefited from our care service since 2005, but following two tragedies in the space of three years, Shooting Star Children’s Hospices has been there for them more than ever before. 

James’ story

Epidermolysis Bullosa (EB) is a rare skin condition affecting around 5,000 people in the UK. People with EB have extremely fragile skin which can tear and blister at the slightest touch. There are many variants, and one-year-old James has the most severe form of the condition.

Orla’s story

Following a devastating diagnosis during pregnancy, parents Helen and Ben didn’t think they’d get more than a few hours with their baby. But Orla came out fighting and the family spent three days together, making precious memories they’ll never forget.

George’s story

Up until the age of seven, George was living a life like any other healthy child. But one day everything changed for him and his family.

Ruby’s story

12-year-old Ruby has got various symptoms which have developed over many years. She has lots of diagnoses, but no defined condition, which means her symptoms are difficult to manage.

Adnan’s story

“The night Adnan was born was probably the worst night of my life,” says mum Zainab. “You know giving birth is going to be horrible, but you think there’ll be a reward at the end. And there I was on a ward of new mums with their babies and I was on my own.”

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