5-year-old Evie has a condition so rare and complicated it remains undiagnosed. Since she was just a few weeks old, Evie has had regular seizures and strokes because of restricted blood flow to her brain. These have left her weak on the right side of her body, unable to talk and registered blind.
“The night Adnan was born was probably the worst night of my life,” says mum Zainab. “You know giving birth is going to be horrible, but you think there’ll be a reward at the end. And there I was on a ward of new mums with their babies and I was on my own.”
Supported mum, Britt, describes the highs and lows of being a mum to a child with a life-limiting condition and credits Shooting Star Children’s Hospices with coming to her family’s rescue when they needed it the most.
9-year-old Dominic was diagnosed with Duchenne Muscular Dystrophy (DMD) just before his third birthday. His father, Paul, talks to us about coping with the devastating realities of his son’s condition and the special bond they’ve formed through running together.