Research Outputs

Palastanga, E. L., Gibson, P., & Greenhalgh, M. (2025). What can we learn from a hospice? (Contributions by M. Barton, S. Hodkinson, G. Garbujo, R. Legarte, C. Luk-Worrall, K. Wiggs, A. Davidson, A. El Hallab, E. Wilson, H. Tufton, & E. Burch). In Supporting bereaved children in the primary classroom: Helping children process death, grief and loss (1st ed., Chapter 9). Routledge.

Hodkinson, S., & Garbujo, G. (2024). Music therapy and dramatherapy in children’s hospices: Playing in time. In U. Herrmann, M. Hills de Zarate, M. Hunter, & S. Pitruzzella (Eds.), Arts therapies and the mental health of children and young people (Vol. 2, pp. 51–65). Routledge.

Menezes, A., Lewin-Taylor, T., & Price, J. (2023). Care of the child and young person with life-limiting illness. In J. Price, O. McAlinden, & Z. Veal, (Eds.), Essentials of nursing children and young people (2nd ed., pp. 519–528). SAGE.

Anderson, A. K. (2018). Palliative care in adolescents and young adults. In J. Chisholm, R. Hough, & L. Soanes (Eds.), A practical approach to the care of adolescents and young adults with cancer (pp. 179–210). Springer.

Golan J. (2025, February). Addressing the gap in children’s palliative care. The Psychologist.

Golan,. J. (2025). Contribution to Commission on Palliative and End-of-Life Care, Vol. I & II.

Anderson, A. K. (2024). Contribution to Association for Paediatric Palliative Medicine Formulary, Sixth Edition. L. Brook & A. Aindow (Eds.). Association for Paediatric Palliative Medicine.

Lewin-Taylor, T. (2023). Contribution to Collaborative Planning for End-of-life Decisions. Children and Young People’s Advance Care Plan: Best Practice Guidance.

Lewin-Taylor, T. (2017). Contribution to A Perinatal Pathway for Babies with Palliative Care Needs, Second Edition. Together for Short Lives.

Skinner E., Burke K., Golan J., Lewin-Taylor T., & Anderson A.K. (2026, May). Assessment of Capacity in Specialist Paediatric Palliative Care: Decision Making for Advance Care Planning. European Association for Palliative Care Congress. Prague, Czech Republic.

Hodkinson, S., & Dennis, L. (2026, February). Expanding the boundaries of Children’s Palliative Care: Sudden child death and bereavement care. International Children’s Palliative Care Network Webinar Series.

Golan, J. (2026, February). The role of a researcher in a children’s hospice. Evidence into Practice Community of Practice Hospice UK Webinar Series.

Dennis, L. (2025, November). A game changer: Professional events management expertise transforms care delivery in the psychosocial provision of groups and events. Hospice UK Conference, Birmigham, UK.

Summers, S. (2025, November). Improving perinatal palliative care: ​Impact of a perinatal service on referrals and symptom management​. Association for Paediatric Palliative Medicine Research Conference, Birmigham, UK.

Golan, J. (2025, September). Cultural Competency Project: Reflections by Staff at Shooting Star Children’s Hospices. Cultural Competency Symposium. Cardiff, UK.

Golan, J. (2025, August). Shooting Star Children’s Hospices: Provision & Research. Pioneering in changing the perception of hospice. “Home Non Invasive Ventilation for Patients with Neuromuscular Diseases” Conference. Phase III of the Project: “1500 Years of Survival”. Khmelnytskyi, Ukraine.

Luk-Worrall, C., Thomas, M., Fraser-Tytler, C., & Darker-Smith, S. (2025, July). Integrating music and creativity in eye movement desensitisation and reprocessing (EMDR). European Music Therapy Conference. Hamburg, Germany.

Hodkinson, S. (2025, June). The holistic systems approach needed to support families after the death of their child: Data and outcomes. Royal College of Obstetricians and Gynaecologists World Congress. London, UK.

Hodkinson, S., & Dennis, L. (2025, May). Using validated assessment tools to advance clinical decision-making in children’s hospice psychosocial care services. Together for Short Lives National Conference. Manchester, UK. (Dame Elizabeth Fradd Award for Innovative Research and Excellence in Palliative Care).

Pawley, S., Walker, F., Sorfleet, A., Kershaw, G., Golan, J., Burke, K., Powell, E., & Anderson, A.K. (2025, May). RASPberry PEArLS: Regular Achievable Sustainable Peer-to-Peer Education and Learning; Hospice Skills & Drills. Together for Short Lives Conference. Manchester, UK.

Hodkinson, S., & Dennis, L. (2025, February). Inequity in access to bereavement care for families whose child dies unexpectedly: Pioneering care from a children’s hospice. The Research into Practice Marie Curie Conference.

Dennis, L., Baldock, D., Whiting, R., & Price, J. (2024, November). Hospice E Learning Placement using PEEP (Children and Young People). Hospice UK Conference. Glasgow, UK.

Luk-Worrall, C. (2024, May). Using Supportive Music and Imagery (SMI) to support eye movement desensitisation and reprocessing (EMDR) trauma processing sessions with bereaved parents. British Association of Music Therapy Conference. Leicester & Online, UK.

Lewin-Taylor, T., Hunt, K., and Pringle, A. (2024, May). Can an integrated model support delivery of palliative care in PICU and NICU: Systematic Review. European Association for Palliative Care. Barcelona, Spain.

Anderson, AK. (2024, May). Agitation in Paediatric palliative care: a clinical guideline. European Association for Palliative Care. Barcelona, Spain.

Hodkinson, S., and Nanauwan, T. (2024, November). Shooting Star Specialist Bereavement Service Pilot with North West London Integrated Care Board Child Death Review Team. Association of Child Death Review Professionals Conference. Milton Keynes, UK.

Cohen, J., Menezes, A., Burke, K., & Anderson, A.K. (2020, March). Development of an innovative new responsive model of care by a children’s hospice. Together for Short Lives Conference. Birmingham, UK.

Burke, K., Coombes, L., Menezes, A., & Anderson, A.K. (2019, July). Research in children’s palliative care. Shooting Star Children’s Hospice Case Conference. Guildford, UK.

Burke, K., Coombes, L., Menezes, A., & Anderson, A.K. (2019, November). Caroline Menez Paediatric Palliative Care Team. Association for Paediatric Palliative Medicine Research Conference. London, UK.

Coombes, L., Burke, K., & Anderson, A.K. (2016, November). The use of rapid onset fentanyl for children and young people with breakthrough cancer pain. 3rd Congress on Paediatric Palliative Care: A Global Gathering. Rome, Italy.

Burke, K., Coombes, L., Anderson, A.K., & Menezes, A. (2016, May). The surprise question in paediatric palliative care. European Association for Palliative Care. Dublin, Ireland.

Lewin-Taylor, T., Smith, M., Robinson, P., Burke, K., & Golan, J. (2025, November). Addressing the gaps: Evaluating an innovative 24/7 community nursing model for children at end of life. Hospice UK Conference. Liverpool, UK.

Summers, S., Lewin-Taylor, T., Burke, K., Golan, J., Osborn, C., & Anderson, A.K. (2025, November). Improving perinatal palliative care: ​Impact of a perinatal service on referrals and symptom management​. Association for Paediatric Palliative Medicine Research Conference. Birmingham, UK.

Liossi, C., Turner, G., Johnson, M., Renton, K., Harrop E., Mott., Christine., Rajapakse, D., Anderson, AK., et al. (2025, June). Developing a paediatric breakthrough pain assessment questionnaire: progress so far. International Symposium on Paediatric Pain. Glasgow, UK.

Liossi, C., Johnson, M., Tammam, E., Holley, S., Renton, K., Schoth, D., Carter, B., Anderson, AK., & Harrop E. (2025, June). Development of an educational intervention for parents to manage pain in children and young people with life-limiting and life-threatening conditions (PARAMOUNT). International Symposium on Paediatric Pain. Glasgow, UK.

Hodkinson, S., & Dennis, L. (2025, May). Every death matters: a UK children’s hospice demonstrates how to extend reach and impact of bereavement services. European Association for Palliative Care. Helsinki, Finland.

Hodkinson, S., & Dennis, L. (2025, May). Time to address inequities in children’s hospice care: Building future services that open access to families of all expected and unexpected child deaths, so invaluable support hospices provide reaches those in need. Together for Short Lives. Manchester, UK.

Dennis, L., & Hodkinson, S. (2024, November). Sudden and unexpected deaths of babies, children and young people: Expansion of Shooting Star Children’s Hospices Specialist Bereavement Service. Hospice UK Conference. Glasgow, UK.

Anderson, A.K., Tammam, E., Harrop, E., Lewin-Taylor, T., & Holland C. (2024, November). Parent co-production for Southeast Children and Young People Palliative Care regional program. Association for Paediatric Palliative Care Conference. London, UK.

Pringle, A., Anderson, AK., Lewin-Taylor, T., & Price, J. (2024, May). This is how we do it: Development of research culture at a children’s hospice. European Association for Palliative Care. Barcelona, Spain.

Summer, S., Anderson, AK., Lewin-Taylor, T., Linford, H., Pringle, A. (2024, March). Introduction of a perinatal palliative clinical nurse specialist role enhancing partnership working between palliative care and perinatal services-one year on. The Royal College of Paediatrics and Child Health Conference. Birmingham, UK.

Cohen, J. (2023, November). Collaborative strategy consultation leads to a change in hospice’s strategic ambition. Hospice UK Conference. Liverpool, UK.

Hodkinson, S., & Dennis, L. (2023, November). Can specialist hospice bereavement care be for every family? Hospice UK Conference. Liverpool, UK.

Lynch, M., Lewin-Taylor, T., Pringle, A. (2023, November). The search for parity: Developing 24/7 community care models at a children’s hospice. Hospice UK Conference. Liverpool, UK.

Richardson, S., Whiting, R., Price, J., & Chadwick, A. (2023, November). Collaborative working to support the development of simulation training in palliative care. Hospice UK Conference. Liverpool, UK.

Pringle, A., Butler, S., & McLaughlin, L. (2023, October). The development of the Research in Hospices (RiH) group: Supporting junior researchers in children’s hospices. Association for Paediatric Palliative Care Conference, London, UK.

Pringle, A., Coombes, L., & Anderson, A.K. (2023, June). Reporting of symptom-associated distress by children and young people with life- limiting and life-threatening conditions and their proxies. European Association for Palliative Care. Rotterdam, The Netherlands.

Anderson, A.K., Coombes, L., & Burke, K. (2020, October). Eliciting the symptom experience of children receiving palliative care using open questions and the Memorial Symptom Assessment Scale. European Association for Palliative Care Online.

Burke, K., Coombes, L., Petruckevitch, A., & Anderson, A.K. (2019, May). Inter-rater reliability of the Phase of Illness tool in paediatric palliative care. European Association for Palliative Care 16th World Research Congress, Berlin, Germany.

Coombes, L., Burke, K., Menezes, A., & Anderson, A.K. (2018, October). Signs and symptoms experienced by children in the last 7 days of life. 4th Maruzza Congress on Paediatric Palliative Care. Rome, Italy.

Coombes, L., Burke, K., & Anderson, A.K. (2017, May). The use of low dose morphine in children with cancer. European Association for Palliative Care Conference. Madrid, Spain. (Winner of Best Poster Award).

Chan, L. C., Anderson, A.K., Coombes, L., & Burke, K. (2017, May). Experience with ketamine in treating paediatric oncology patients with neuropathic pain. European Association for Palliative Care. Madrid, Spain.

Burke, K., Coombes, L., & Anderson, A.K. (2017, May). The prevalence and management of breathlessness in children who die from cancer. European Association for Palliative Care. Madrid, Spain.

Burke, K., Coombes, L., Anderson, A.K, & Menezes, A. (2016, November). Comparing the prognostic accuracy of the “surprise” question across paediatric diagnostic categories. Congress on Paediatric Palliative Care: A Global Gathering. Rome, Italy.

Coombes, L., Burke, K., Menezes, T, & Anderson, A.K. (2016, June). The use of the ´Surprise´ question in paediatric palliative care. European Association for Palliative Care Conference. Dublin, Ireland.

Lawrence, K., Coombes, L., Burke, K., & Anderson, A.K. (2016, May). An analysis of personal resuscitation plan completion and use in a UK tertiary paediatric oncology centre. 2nd International Children’s Palliative Care Network Conference. Buenos Aires, Argentina. (Winner of Best Poster Award).

Lewin-Taylor, T., Bradbourne, C. (2015). The PATCH Service – Merging Oncology and Non-oncology to Provide an Equal and Expert Paediatric out of Hours Service. European Association for Palliative Care. Copenhagen, Denmark.