“Our family, especially our three wonderful children, Henry, Toby and Olly, have always loved Christmas traditions and making magical memories together. Now memory making is even more important to us because we know those precious memories will one day be all we have. In November last year our world was turned upside down when Toby was diagnosed with adrenoleukodystrophy (ALD), a rare brain disease that irreversibly damages the brain and spinal cord. During what should’ve been a time of joy, we were told that our happy and bright little boy would become totally dependant on us, and would die from the condition. It was devastating. Not just for Toby, Matthew and me, but for Henry and Olly – no child should have to hear that their brother is going to die.”
"Last Christmas was a time of immense sadness. This year, we have Shooting Star by our side."
Help families like Toby's make every moment count
could pay for a visit to our Santa’s grotto so children like Toby can meet Father Christmas in a safe environment.
could pay for a wonderful Christmas lunch for families staying at our hospice over the festive period.
could pay for a specialist counselling session to help parents like Fleur find the strength to celebrate Christmas and make lasting memories.
Any amount will help support families like Toby’s this Christmas. (Please don’t use a £ when entering an amount here.)
£3 a month helps run our support groups, giving siblings of children like Toby the opportunity to make friends, have fun and talk about their feelings in a safe, supportive environment.
£10 a month helps to fund our Family Support Line, which gives families like Fleur’s access to advice and support about everything from therapies to paying the bills, or simply someone to talk to when times are tough.
£15 a month can help pay for our nurses, therapists and support workers, keeping our hospice running, ensuring families like Toby’s have somewhere to stay for much needed respite care.
